NHS Central London Clinical Commissioning Group (CCG) in collaboration with West London, Hammersmith & Fulham and Brent CCG would like to share our current thinking for how we address the challenges faced by palliative care services in these areas.
As commissioners and providers we are in agreement that reaching only 48% of patients who may have a palliative care need is not good enough. It is paramount that we increase the reach of specialist palliative care services to all patients who need it, regardless of their disease type.
This is an opportunity to re-design our services to make sure they reach more people, are better co-ordinated and that they are responsive in an emergency and no matter the time of day.
How can I get involved?
Working with our local hospice providers and from the information we have gathered from our working group and the local community, we have proposed some potential scenarios that we would like to hear your views on over the next four weeks. Please follow the link to this Involvement Document and complete our survey in print or online on the proposed scenarios.
We want as many people as possible to tell us their views, if you need this information in a different format like a printed or large print copy, easy read, audio recording or a translated version, please let us know what you require and we’d be happy to help.
What we have heard from engagement so far?
Since December 2018 we have engaged; local patients, families, carers, residents, the voluntary and community sector and patient representative groups across the four boroughs. A ‘Call for evidence’ was launched to hear local people and professional’s views on services and how they are working. This information formed the basis of an Independent Review by Penny Hansford, who previously worked as Director of Nursing at St Christopher’s Hospice in South London.
Following the publishing of the review findings, three public workshops were held to look at people’s experience of palliative care services; focusing on access, care and the transfer of care and bereavement.
Key themes from these workshops included; care not being the same across boroughs, the need for better care planning and coordination, care that is more appropriate for minority groups and the impact of travel times and costs for friends, family and carers. Full summary report of the three workshops can be found here.
Following the workshops a Patient and public working group was formed with representation from HealthWatch to represent the patient voice on the progression of this programme.
I want to get involved but would like more information around palliative care
We understand that the topic of palliative care can at times seem daunting. We have produced an Information Pack about palliative care, if you would like any definitions added to this pack please let us know via the email.
The results of this engagement period will be presented to CCG governing bodies for consideration of the next steps. This is not a consultation period. Should any recommendations be classed as a ‘substantial’ change to the existing palliative care service by our governing bodies and associated NHS bodies these changes will be subject to a public consultation.
You can sign up to the mailing list to receive email updates on the progress of the palliative care review. Please email email@example.com to sign up to the mailing list.
The Pembridge in-patient unit
We regret that the in-patient unit at the Pembridge Palliative Care Centre continues to be suspended whilst we continue this review of services. Patients requiring in-patient services will continued to be cared for by an alternative hospice in the area at this time.
For any further questions you can contact us by:
The engagement period will close on Friday 13 March.